Tuesday

30

April 2013

What Celiac Disease Awareness Month means to me

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This is a face of too many misdiagnoses. This is me before I finally had an answer.

My body was wracked and in shambles. Nervous system stressed to the point of strong shaking episodes. I could no longer drive myself more than ten minutes without experiencing massive dizziness and bouts of blurry vision. No food would stay down no matter how much I ate, which resulted in a scary weight of less than 95 pounds. ADHD ruled my everyday, my mind raced constantly, and then there was the pain. A lot searing pain. These things were the norm, and the norm was becoming worse and worse–fast. I thought I would never function in society normally ever again because of what seemed to be eating me alive from the inside out. But I couldn’t find an answer. And I knew I couldn’t go on like that.

I remember feeling incredibly frustrated and ready to give up after doctor upon doctor brushed off my debilitating symptoms, whittling them down to things like stress, “being a college student”, irritable bowel syndrome, anxiety, depression,  just “getting older”, and even an eating disorder. Well of course I had an “eating disorder”; food just went in and came right back out…unintentionally! The fact that I saw half a dozen doctors that misdiagnosed me and failed to look for the root cause, (one that isn’t “solved” with a pill) frankly scares me. It scares me more today than it even did back in that moment because at the time, I didn’t realize that I really could have died from this.

Luckily, my parents were able to help me find a doctor who finally listened to all of my symptoms. That doctor turned my life and health completely around in a matter of weeks with the first mention I’d ever heard of Celiac Disease and gluten. While grateful, I questioned why I was not correctly diagnosed when my first symptoms showed as a toddler. I was nearly 21 years old when the diagnosis came, and it came at the breaking point. This is not acceptable to me, and shouldn’t be to anyone.

May is Celiac Disease awareness month. I see it as my moment to shine and be proud of what I’ve overcome. I’m healthy and alive today, living in harmony with my lifelong disease. While I often advocate for awareness throughout the year, I’m taking the special opportunity today to share my story again in hopes that the more we share, the shorter the diagnosis time will become. According to the National Foundation for Celiac Awareness, the average time it takes for someone to be correctly diagnosed with the disease is 6 to 10 years. Misdiagnosis and no diagnosis can cause permanent damage, cancer, and can kill.

Healing can only begin after answers are found. Talk to someone about Celiac Disease today. Read about Celiac Disease on the NFCA website, or follow the links in my Resources page. And don’t forget to hug a lovely Celiac near you ;)

Happy Celiac Disease Awareness Month!

Tuesday

23

April 2013

On the Wild Inner Self and Breakfast Quesadillas

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I used to be a wild child of sorts. I say of sorts because somewhere in my excitable nature, that lively and unfiltered strain of myself still lurks. You know, the part that spontaneously dances like mad with the grace of an uncoordinated five year old. Well, I suppose you don’t know but rather my sister does. Or the part that picks the most obnoxious parts of obnoxious songs and sings them loudly and repeatedly without thinking twice (Sorry Lindsey). Or the part that occasionally likes to split a bottle of wine on a Wednesday night and frolic around in the park and play on the playground. Yes, that slightly wild and silly part that I suppress sometimes (a lot more than I should) not only exists, but reels like crazy deep down. And I’m okay with that, now more than ever.

The past few months of this winter really had me feeling older than my years, down to aching joints and grumbling mornings to boot. I found myself suppressing my inner happy go lucky self in order to be taken more seriously and try to be more productive. Over the last few years actually, that has been the trend. After college graduation, I thought it was time to “grow up”. But I think the opposite of what I wanted to happen, happened. And I didn’t expect it. I became less interested with myself, more tired, and frankly more boring. I was working hard, and had some successes, but wasn’t really happy. I felt like a stifled, shushed, whiny, and tired-of-it-all woman. At my own hand no less.

This year, and even more so with the recent coming of spring, I find a familiar feeling bubbling up inside of me; something that makes me take a step back and wonder, “Hang on, where the hell have I been??” The other morning, I woke up with “Another One Bites The Dust” stuck in my head (don’t ask), and suddenly found myself belting out some Queen and shakin’ it like nobody’s business–like it was automatic. And it is, because it’s who I am. I’m dancing like crazy. I’m not being overly cautious. I’m not catering to what “they” might think. I’m finding more and more happiness with letting that wild vibrant spirit of mine come to light with the realization that I was perfectly imperfect before I tried to “grow up” too much. Perhaps I tried to suppress that part of me to make up for the time I thought I’d lost. My battle with undiagnosed gluten issues, food allergies, and ADHD made being successful difficult. Really difficult. I managed, but I had to work around these things for a long time and had to work A LOT harder than I do after diagnosis to make it all jive. Maybe I tried to kill that wild, silly, lovely part of myself because it reminded me of more hazy, uncertain, and unhealthier days. But the fact is, I’m not unhealthy anymore. I’m bursting with life and heart and crazy big opportunities that demand my inner vibrancy! It’s been a long time coming, but now I’m just finding I’ve reached that refreshing balance of being young at heart while still being a capable professional gearing up to take on the world. This is my crazy state of grace.

By the way, this really has nothing to do with gluten-free Breakfast Quesadillas, other than the fact that they’re also quite bold and pack a punch of spicy flavor. Oh well. I feel like my own authentic self now more than ever before. There’s something to be said for that.

And no one said it better than Pink Floyd… so shine on you crazy diamond.

Remember when you were young, you shone like the sun.
Shine on you crazy diamond.
Now there’s a look in your eyes, like black holes in the sky.
Shine on you crazy diamond.
You were caught on the crossfire of childhood and stardom,
blown on the steel breeze.
Come on you target for faraway laughter,
come on you stranger, you legend, you martyr, and shine!
You reached for the secret too soon, you cried for the moon.
Shine on you crazy diamond.
Threatened by shadows at night, and exposed in the light.
Shine on you crazy diamond.
Well you wore out your welcome with random precision,
rode on the steel breeze.
Come on you raver, you seer of visions,
come on you painter, you piper, you prisoner, and shine!”

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Gluten-free Breakfast Stuffed Quesadillas

This recipe is free of: Gluten, Soy, Lactose (contains Casein), Peanuts, Legumes, and Refined Sugar.

Yield: One large Quesadilla

  • 2 brown rice tortillas, or gluten-free tortillas of choice (I use Food For Life brand).
  • 1 cup grated almond jalepeno jack cheeze (contains casein, but no lactose. I use Lisonatti Foods brand)
  • 1/2 cup diced onion
  • 1/4 cup diced green bell pepper
  • 2 tablespoons olive oil
  • 3 eggs, scrambled
  • Salt, Pepper, and Cayenne (optional) to taste
  • 1/4 cup green onions
  • Salsa of choice for serving (I use Mrs. Renfro’s Medium Salsa)
  1. In a small fry pan, saute diced onion and green bell pepper with spices.
  2. Add 3 eggs and cook until it becomes scrambled. Remove from the heat.
  3. In a larger fry pan over low/medium heat, add the first tortilla to the pan and cover with shredded almond cheeze. Add the scrambled eggs on top and sprinkle with a bit more cheese.
  4. Add the second tortilla on top and press down until the cheeze starts to melt. After about 3 to 4 minutes, carefully flip over the quesadilla and allow to cook the rest of the way on that side. The edges may get a little crispy, but just keep them pressed down with a pancake flipper or spatula.
  5. Remove from the heat and sprinkle with chopped green onion and salsa. Serve hot.

Tuesday

05

March 2013

The (almost) Isolation of Severe Allergies

Sometimes writing things down can be a kind of therapy. A way to empty out all my thoughts, clear my head, and make sense of some of the loose ends. So today, I’m writing something I need to read myself. The other day, I was feeling a little similar to Charlotte in Lost in Translation, someone who ultimately wasn’t really being neglected by someone else, but was actually neglecting or not acknowledging a part of herself. (I included a clip from the movie above, a beautiful scene that happens to include one of my favorite songs by Air).

Isolation is something I’ve fought feeling and understanding for quite some time now. Just recently have I allowed myself to acknowledge that I’ve been feeling this in my subconscious for years. Not all the time, but just enough to let it silently throw me off kilter sometimes. It’s a difficult feeling to put to words, but I’m guessing there might be thousands of other people out there that will instantly understand my sentiments here without me writing another character. It’s not really about wishing things were different, because I’m extremely happy where I am in life today. It’s more about a silent state of mind that hits periodically; a reflective, almost anxious but not quite, tingling that tries telling me I shouldn’t venture out too far because I’m different. Really different. By nature. Once recently, I let this feeling slip over me and talk me out of going for a day trip alone, trying to eat out at a restaurant I really missed, and just exploring somewhere I’d never been before. I wasn’t afraid of the possibility of getting sick from food, having an allergic reaction, or getting lost. I just felt a melancholy thought that if anything happened, no one would understand or could understand. “How could they understand?” I thought. Sometimes I didn’t even understand what I was reacting to and still slip up in my own kitchen at times. I realized how very wrong I was to let this deter me. This day trip represented more than just a day trip. It’s living life.

I think periodic feelings of isolation began for me when I started to feel the physical symptoms of chronic disease some 5 years ago. I felt stabs of mortality, pain, fear, anxiety, and sadness before all my diagnoses. I truly felt alone for the first time in my life, even though everyone around me was trying to help. Since then, I’ve overcome so many obstacles and I’m proud of how far I’ve come. Things have changed drastically for the better. I will never complain about the blessings that many severe food allergies and Celiac disease have brought me and these things ultimately taught me great lessons and great joy. I will never curse them away. But I’ve changed so much as a person through this journey, I don’t quite recognize who I was before all of this happened. Sometimes it results in a more reserved, reflective form of myself who shys away from uncertainty. These waves of isolation represent more than I think they do though. Maybe I’ve been thinking about this all wrong. Feeling isolated is not the same thing as feeling different. Isolation is really something you create yourself. It is not just a byproduct of circumstance. It is a closed state of mind, an un-celebration, if you will, of what makes you bold and beautiful. Maybe isolation isn’t that you think other people won’t understand you, but that you aren’t fully understanding yourself.

I’m mainly writing this down so I don’t forget what I’m now understanding, however rambled sounding it may be. Isolation is a choice. It can be a detriment, or it can be a catalyst to challenge the status-quo of your own life. If I had given in to feelings of isolation before, would I have ever reached out and started this blog? No. Would I be snapping photos and contributing to a magazine I love? No. Would I be a freelance writer? Certainly not. Today, I’m using this understanding to go even further towards what I might be unsure of and what might seem challenging to me.

I was just going to end this post on that note, by was struck by a strong memory. In one of the first conversations I ever had with my now fiance, he said something simple yet profound.

Life isn’t waiting, so neither am I.

Funny how fragments of life well lived come back in the moments when you really need to see them the most.

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Tuesday

26

February 2013

The Weekend in Pictures

Qrunch Veggie Burgers

 - Qrunch Quinoa Veggie Burgers, free of the top 8 allergens, gluten, and corn. -

This weekend was a rare occurrence. We had a leisurely weekend without planning anything or working on projects and it really felt like a mini-vacation, even though we didn’t travel anywhere. Since I graduated from college with my undergrad degree two years ago, I felt like I’d been living on a scrambler carnival ride non-stop. I treasured having some time to recharge and definitely agree with the sentiment that the best ideas, creativity, and motivation comes from taking a time out from the bustling.

Southwest Chicken salad

- Homemade Southwest Chicken Salad with salsa and black beans. Wait…did I say Black Beans? Yes, I did. My legume allergy seems to be lessening, as I can now tolerate black beans with no adverse reactions. I’m ecstatic! -

Hearty chicken pasta

- Leftovers done right: Hearty Brown Rice Pasta with Turmeric Roasted Chicken with Italian Herbs -

Quick goat cheese pizza

- Quick Goat Cheese Pizza using Brown Rice Crusts -

Almond Flour Blueberry Muffins

- Almond Flour Orange Blueberry Muffins. I’ll be sharing this recipe in my next post. -

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Wednesday

13

February 2013

Dairy-free Cream of Celery and Avocado Soup

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This January, I began the journey to earn my Master’s degree in Nutrition and Dietetics. It’s been a month of adjusting to being a college student again, but I have no complaints whatsoever. I knew I wanted to study nutrition four years ago this month, when my gluten issues were first diagnosed. My passion for health and food has only grown more full in time. I’m loving every second of grad school so far and constantly find myself asking, “what took me so long to start this?” Well regardless of the delay, I’m here and can’t wait to savor every second of it. In about 3 years time, I’ll be a Registered Dietician.

Before I started formally studying nutrition, I knew veggies were nutrient powerhouses, but after learning some of the science behind these babies, I decided I need to incorporate even more of them into my menu. Since winter is still in full swing in Michigan right now, a warm and creamy veggie soup sounded more than appropriate. I’m largely dairy-free due to lactose intolerance so I opted for whole coconut milk to achieve a classic “cream” of celery soup. I went a step further and added half of an avocado, which in my opinion really puts this velvety smooth soup over the top.

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Dairy-free Cream of Celery & Avocado Soup

This recipe is free of: Gluten, Grains, Soy, Peanuts, Dairy, Legumes, & Processed Sugar

  • 2 cups celery, diced
  • 1 medium onion, diced
  • 2 cloves garlic, minced
  • 3 cups water, or vegetable stock
  • 1/2 cup whole coconut milk
  • 1/2 of 1 large avocado
  • 2 tablespoons olive oil
  • Salt
  • Freshly cracked black pepper
  • 1/2 teaspoon white pepper
  • Optional: Dash of cayenne pepper
  1. In a large saucepan, saute celery, onion, garlic, and spices over medium heat for 4-5 minutes.
  2. Add water, coconut milk, and avocado and bring to a boil.
  3. Reduce heat, cover and let simmer for 15-20 minutes.
  4. Remove from heat, let cool slightly, then transfer to a blender.
  5. Blend on high until a smooth consistency is achieved. Transfer to serving bowls, garnish with celery leaves or stalks and serve hot or at room temperature.

**Note: If a thicker consistency is desired, decrease the water in the recipe. If you’d like it thinner, increase water content.

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