What Celiac Disease Awareness Month means to me

This is a face of too many misdiagnoses. This is me before I finally had an answer.

My body was wracked and in shambles. Nervous system stressed to the point of strong shaking episodes. I could no longer drive myself more than ten minutes without experiencing massive dizziness and bouts of blurry vision. No food would stay down no matter how much I ate, which resulted in a scary weight of less than 95 pounds. ADHD ruled my everyday, my mind raced constantly, and then there was the pain. A lot searing pain. These things were the norm, and the norm was becoming worse and worse–fast. I thought I would never function in society normally ever again because of what seemed to be eating me alive from the inside out. But I couldn’t find an answer. And I knew I couldn’t go on like that.

I remember feeling incredibly frustrated and ready to give up after doctor upon doctor brushed off my debilitating symptoms, whittling them down to things like stress, “being a college student”, irritable bowel syndrome, anxiety, depression, just “getting older”, and even an eating disorder. Well of course I had an “eating disorder”; food just went in and came right back out…unintentionally! The fact that I saw half a dozen doctors that misdiagnosed me and failed to look for the root cause, (one that isn’t “solved” with a pill) frankly scares me. It scares me more today than it even did back in that moment because at the time, I didn’t realize that I really could have died from this.

Luckily, my parents were able to help me find a doctor who finally listened to all of my symptoms. That doctor turned my life and health completely around in a matter of weeks with the first mention I’d ever heard of Celiac Disease and gluten. While grateful, I questioned why I was not correctly diagnosed when my first symptoms showed as a toddler. I was nearly 21 years old when the diagnosis came, and it came at the breaking point. This is not acceptable to me, and shouldn’t be to anyone.

May is Celiac Disease awareness month. I see it as my moment to shine and be proud of what I’ve overcome. I’m healthy and alive today, living in harmony with my lifelong disease. While I often advocate for awareness throughout the year, I’m taking the special opportunity today to share my story again in hopes that the more we share, the shorter the diagnosis time will become. According to the National Foundation for Celiac Awareness, the average time it takes for someone to be correctly diagnosed with the disease is 6 to 10 years. Misdiagnosis and no diagnosis can cause permanent damage, cancer, and can kill.

Healing can only begin after answers are found. Talk to someone about Celiac Disease today. Read about Celiac Disease on the NFCA website, or follow the links in my Resources page. And don’t forget to hug a lovely Celiac near you

Happy Celiac Disease Awareness Month!

Tuesday

April 2013

Classic Gluten-free Blueberry Pie

Sometimes when I embark on something new and big, I usually crave something comfortable and familiar to keep things feeling balanced. Like gluten-free blueberry pie. Warm, juicy and naturally sweet, it pairs perfectly with a scoop of sugar-free vanilla coconut milk ice cream. One of my favorite blueberry pie recipes is gluten-free and dairy-free from The Spunky Coconut. I’ll be indulging in a similar blueberry cobbler (above) today, as I just finished a two-day long overhaul of my blog (as you’ve probably come to notice). I’m now completely self hosted and couldn’t be happier with the new design! To top it off, my fiance just finished graduate school and starts his new job next week. He’ll be spending more time at home this summer, something I know we’ll both cherish. So what’s not to celebrate? I hope you’re looking forward to the long days of summer as much as I am.

Sunday

April 2013

Contest Winner, Happy Spring!

Congratulations to Anne H, the contest winner of the Red Apple Lipstick Mint 2 Be gloss giveaway!

Thanks to everyone who entered, and be sure to stay tuned for some other giveaways in the future. I also want to wish everyone a happy spring and share a picture of the beautiful spring flowers my fiance brought home the other day. Have a lovely start to the week!

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Friday

March 2013

Earth Hour 2013

“The World is using the equivalent of one and a half planets to support life on Earth.”

Earth Hour 2013 is coming up tomorrow, Saturday March 23 at 8:30pm (Eastern time) and I couldn’t be more excited! It snuck up on me this week and I nearly forgot all about it until yesterday evening, even after I recently wrote an article for Delight Gluten-Free Magazine about celebrating it with a gluten-free twist in the March/April issue….safe to say it’s been a busy week! We’re planning to switch off all our lights and appliances, have a candlelight yoga session, and indulge in vegan blueberry pie–the recipe will be posted on Sunday!

This morning as I was writing this post, I was quietly listening to the news in the background. They were discussing a nominated CNN Hero, Doc Hendley, for his work in bringing clean water to those living in impoverished areas where safe water is scarce. It’s sadly not news to me that many people in other countries must walk for 4 or 5 hours just to reach their water for the day, and it’s dirty water at that. Today is World Water Day and I feel incredibly lucky to live in a place where clean water is available to me whenever I turn on the sink. Clean water should not be a privilege. It’s so vital that we take care to preserve the resources on this planet through our everyday actions and by celebrating our planet every day. Check out the awesome video by EarthHour.org for 2013:

In the spirit of celebrating and sustaining our mother Earth, I’d like to share five easy but effective things that I try to do on a regular basis to help sustain our planet:

Turn off the water faucet while brushing teeth to save water.
Use sustainable candles and candlelight instead of lamps a few nights per week.
Bring reusable grocery bags on shopping trips. If I forget, I am sure to recycle the bags by using them for small trash bags in the house or in other ways.
Use (or upgrade to) energy saving electronics and appliances whenever possible. My latest energy efficient purchase was an energy star ultrabook laptop.
Buy local produce often. I love supporting the local farmers and economy in this way. A bonus is planting a garden annually ourselves.

For more ideas to celebrate Earth Hour and Earth Day often, check out my article in the March issue of Delight Gluten-Free Magazine for tips and fun vegan/raw food recipes. I also have a plethora of easy and earth friendly recipes I’ve posted throughout the life of this blog that can be browsed in the Recipe page or by typing in keywords such as “vegan” or “earth day” in the search box in the upper left corner of my site.

Happy Earth Hour and World Water Day!

How will you celebrate the planet today?

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Thursday

March 2013

Quote of the Day

Everyone I’ve met that has Celiac disease or severe food allergies of any kind, I feel an automatic unspoken sort of connection to. It’s a mutual feeling of understanding, of having “been there”. While I’ve never met Zooey Deschanel, I think she’s the epitome of making the most of her situation with multiple difficult food allergies. I learned Zooey is allergic to gluten, soy, dairy, and eggs from her appearance on Top Chef where she was a guest judge who challenged the contestants to create an allergy friendly vegan lunch for her and her family. It was fantastic to see her embracing herself and her health, while bringing allergy awareness to the mainstream food shows.

I fell in love with this so true quote from Zooey Deschanel, which can apply to everyone regardless of their walk in life:

Being tender and open is beautiful. As a woman, I feel continually shhh’ed. Too sensitive. Too mushy. Too wishy washy. Blah blah. Don’t let someone steal your tenderness. Don’t allow the coldness and fear of others to tarnish your perfectly vulnerable beating heart. Nothing is more powerful than allowing yourself to truly be affected by things. Whether it’s a song, a stranger, a mountain, a rain drop, a tea kettle, an article, a sentence, a footstep, feel it all – look around you. All of this is for you. Take it and have gratitude. Give it and feel love.

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